Need to breathe properly just to start
with!
Had my godmother come to my house the other day to
discuss the Skydive we're doing to raise money for Cancer Research
and she encouraged me to properly explain my situation and WHY I've chosen to
raise money to Cancer Research and why now.
So, here it goes.
When I was 15 I moved out of my mums house
and in with my grandparents, I'd been quite poorly for a while with a lot of
abdominal pain and fatigue, after a few trips to the GP they put it down to
stress with my home situation and GCSE's etc I had already been diagnosed with
Bi-Polar disorder so me having these 'crazy' outbursts where I'd be screaming
in pain they decided to put down to an 'episode'.
But a year down the line, I was studying
at college and finding it really difficult as I was in so much pain a lot of
the time and had all these symptoms which made it really difficult to get
through the day.
So after going back and forth from the GP
and getting diagnosed with 'random' things such as IBS and having multiple
Kidney Stones they finally diagnosed me with PCOS- Polycystic Ovary
Syndrome
(Here's a link if you want a bit of a
read)
So once this was diagnosed I felt like a
weight had been lifted from my shoulders it had been almost 2 years since the
pain had started and I finally felt like we were getting somewhere. I was
prescribed with some strong pain relief for me to take as and when the pain hit
me and I was having counselling to try and ease some of the stress.
However, 8 months later I was still
really struggling, I had so much time off college poorly that I had to drop out
early, I felt so down, like I was completely failing at life, nothing was
working.
One day I went and saw a consultant after
I'd had a series of tests and he explained to me the possibility of cancer.
This word massively scared me and I instantly just thought 'I'm going to die'
At this time my cysts were really playing
up, swelling and bursting causing me absolute agony on a daily basis, by this
point not only had it affected my education it was affecting my social life
too, I couldn't go out much because I'd either be really anxious of pain
starting or I'd be in pain trying to hide it (trying to hide pain in public
kind of leads to you being a snappy t*at and I ended up getting in a lot of
arguments) NOT GOOD.
I felt like no one understood, I was so
confused and felt like I had been completely left in the dark, they carried on
with tests and I carried on spending everyday in pain.
I carried on like this until August 2012
when they finally ruled out cancer.
They decided to send me to lots of
different specialists to explore all different things down in my belly and try
and pin point where the pain was actually coming from.
Then in July 2013 they did a Laparoscopy
which is keyhole surgery to have a look inside your belly, they were checking
for something called Endometriosis
(Another link for a read)
They didn't find any Endometriosis but
they did find rather a large tumour, they took biopsies of my cysts and the
tumour and I was told they were cancerous.
They found many cancerous cells too.
I am still fighting against Ovarian
Cancer which no one knew about, not even really close friends, until very
recently, and some of them still don't know now. (So I'm sorry if this is how you're finding out but please message me if you have any questions)
Friday 15th August 2014 after I'd had a
small operation on the Wednesday my doctor told me there's not a lot more he
can do for me at the moment as my tumour is sticking to my bowel making it
difficult.
Treatment has already blitzed my left ovary
of cancer and I'm very hopeful that it will eventually do the same to my
right.
I’m still having chemotherapy and
unfortunately my hair is now starting to fall out, I’m leaving little party
favours wherever I go of clumps of hair (always laughing at this trying to make
light of the situation) which means I will be shaving my head soon- my
wonderful Auntie Gemma has suggested her shaving her head with me at our
charity night to raise more money for the charity.
I’m not allowed to work full time at the
moment so planning all these things for the charity is giving me something
positive to do with my time, I’m hoping that through all of this negativity the
positive at the end of it is that we have, together, raised a significant
amount of money for CRUK!
I don’t only want to raise money though, I
feel like raising awareness is also as important, not only with ovarian cancer
but all of them, for men, women and children, it’s important we all know the
warning signs and that no one is afraid to go to the doctors, because if I hadn’t
continued going back time and time again I might not know now that I have a
tumour growing inside.
I am now trying to do all the things
I've always wanted to do- Starting with a Skydive with my godmother Andrea-
If you could donate I would be eternally
grateful!
Also, finally telling my story, trying to
make peace, not wasting anymore time on negativity and arguments and immature
feelings. Just doing what truly makes me happy!
I've started writing a bucket list and
I'd be grateful for some help with ideas-
If you wrote a bucket list what would be
the first 3 things on your list?
I'd love to hear!
This has been really hard for me to write but I'm going to start writing this blog through recommendation of other patients and my nurse I guess it will just be a place for me to air my thoughts and feelings and I suppose a place for anyone who cares to come and see how I am?
Aaaaaaaaand breathe...
Lots of Love, Smiles and Well Wishes.
I just came across your blog, literally as of yesterday and you are truly amazing! I've read all your post, and you can just tell you have a beautiful soul.
ReplyDeleteI wish you all the best and all the happiness on this journey.
I can't believe I've only just seen this comment, thank you so much! I hope you're well, thank you for the support!
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